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Author: Created: 8/18/2008 6:42 AM RssIcon
These are my reflections on my mother's condition and life over the years.
By Anne on 10/18/2008 12:27 PM
Dear Friends and Family,
 
I have come to my place of work this Saturday morning to write all of you this email. This is where I have the most current list of my contact names and email addresses. At home we recently purchased a MAC computer. This is not the right time to learn a new computer system during this time of loss as my concentration is not the best right now. My work computer is the one I usually use and it is familiar and reliable so I write this note to you now on this quiet Saturday morning following the death of my dear mother. 
 
Margie-on-Horse---From-Gay.cropped I want to let you know that Margaret (Margie) Sugar died peacefully at home on Tuesday, October 14th at 3:01 pm.  She died with dignity with family members by her side. Mom was active the weekend before she passed attending her Saturday morning coffee group at  Bread Works with Mac, her 86 year old boyfriend. Mid day she went with a friend to an opera TV cast and then later that evening to Mackie Auditorium for a concert again with Mac.
 
When I called Mom on the phone Sunday morning she told me "the plan has changed".  I said that we didn't need to go to church as she had requested earlier in the week. Mom, in a firm voice, again reiterated that the "plan had changed". I told her that I would be right over and that we could talk about it in person. When I got to her condo she was agitated and apparently exhausted from all her activities the two days prior. She said she didn't want to go to church and told me she was ready to depart this world as she couldn't handle not being able to walk up hills or getting into a car without having to lift her weakening legs with her hands due to muscle wasting. We spent time talking about her deteriorating condition and her wish to die. We lay together in her bed and spent quiet time sharing. Mom said she couldn't just rest in her bed as she felt she needed to get on with her day. Those who knew Margie understand that she was highly disciplined and never took time out of her day to laze around or sleep in. Time was precious and she enjoyed each day to the fullest.
 
Mom then got up and fixed herself breakfast and I asked how I could help. Being one who always fastidious Mom requested that I clean.  I spent the morning sweeping, changing her sheets, doing the laundry and tidying up her household. Mom seemed to enjoy watching me work and settled down while reading the New York Times. Looking back it felt like we were nesting just like pregnant mothers often do just before birthing their babies ensuring everything is ready for the "big event". It strikes me how similar the dying process is to the birthing process. Mom then took charge and ordered a pizza and I took a walk to the mall to get it for her. Later that afternoon Mac came over to watch 60 minutes and enjoy the pizza with her.  I said goodbye around 3 pm and told her I would be back in the morning.
 
Monday morning was a sparkling bright cool fall day. She met me at her breakfast table and we waited for the Hospice nurse to show for her regular Monday morning visit. As it turned out,  Kathleen had come on Friday afternoon and Mom forgot so we waited until we called the Hospice office and they told us that Kathleen was on vacation. Looking back now, I am glad for this time as it gave my Mom and I our last chance to talk. Mom again reiterate how ready she was to die as she was now tired of saying goodbye and answering numerous phone calls.  Mom was experiencing increasing pain and pressure from the growing abdominal tumors. The Hospice nurse encouraged her to take increasing amounts of pain medications to match her increasing pain level. Mom was aware of the muscle wasting and her decreasing mental acuity from her disease and the pain meds. I asked Mom if I could stay with her that morning but she shooed off to work being the independent person that she was. She said we couldn't just spend the day just "looking at each other".
I hugged and kissed her good bye and told her I loved her.
 
I was concerned and worried all day and returned to her home after work on Monday. I found her in bed semi conscious. I spent the night with Mom as she slipped deeper and deeper into unconsciousness. Her breathing became increasingly irregular. At 7 am Tuesday morning I called her doctor and he quickly came to visit her.  Dr. T confirmed that she was in the dying process. He retned again at noon to check on Mom. I called Tait and Arv and they came to be by Mom's side with me. Early afternoon Mom's breathing pattern changed and became more shallow. At 3:01 pm she took her last breath, all the while letting go of life. So you see,  she passed in peace and left this world quickly as she had so wished.
 
MargieSugar-FromElisabeth We are now in the throws of planning a Memorial Service at the Unitarian Universalist Church on Pennsylvania Ave in Boulder her congregation of more than 30 years.  The family is honing in on November 1st at 1 pm but final arrangements have not yet been completed. The best place to learn more about the upcoming service will be on the website msugar.com. As recommended by the Mortuary,we will place Margie's obituary in the Daily Camera the Sunday prior to her service.
 
If I have left off a friend please feel free to forward this message.
 
Mom is now released from the cancer that was taking over her body. Her physical body was cremated on Friday but her soul lives on through the countless memories that we have of her. She was a mentor for many and a friend to all that she touched.
 
Lots of Love,
 
Anne Donovan
(Margie's third child who lives in Boulder)
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By Anne on 8/15/2008 1:21 PM

Hi Friends and Family,

Here is an update regarding my Mom, Margie Sugar, as of 8-15-08. In the future go to the Web Site  msugar.com where you can go for updates regarding Margie's condition and state of affairs. My brother John is still in the process of setting it up so keep checking back on the website for updates. Hopefully, most of you received the first email I sent on 8-4-08. If not please see the attachment and feel free to forward these emails to anyone who cares about Margie. It would also help our family to have any current email addresses that we have missed.

When I wrote the last email on 8-4-08, we were expecting the biopsy test results to come back as ovarian cancer. On 8/8 Margie was given a definitive diagnosis of neuro-endocrine metastatic cancer. This is an "umbrella term" for this rare and aggressive cancer. It affects protein and hormonal cells that are found throughout the body. We won't ever know the primary site as we've decided not to chase it down with further tests. It probably started in her lungs even though a chest X-Ray in January was clean. She has masses throughout her abdominal cavity as well as in her uterus. Mom is experiencing pressure from these masses. Her abdomen is extended and the masses are pressing on her internal organs causing her discomfort.  She had another ultrasound today and it is not accumulated fluid that is causing the pressure. So, now we have to wait and see if the Chemotherapy is affective in reducing the masses. Mom is taking quite a bit of pain medication to relieve her symptoms so at times she is groggy.    

Mom started chemo treatments this week and had three rounds on Tues, Wed and Thursday.  Hopefully this treatment will kill the cancer cells and ultimately shrink the masses. There is a 30-50% chance that she will have a 50% positive or better response rate. (The studies only track a 50% positive response rate.) Margie's oncologist Dr. Moran feels she has approximately 6 months left of life but this could go either way. Mom continues to be very pragmatic and says she is ready to die. She is focused on cleaning out her refrig, her closets and her bookshelves. Sometimes this approach is hard for family members who love her and want her here on earth as long as possible. But in fact, the family is clear about her wishes and will do what ever it takes to make her comfortable and enjoy her to the fullest in her remaining days.  I think we are all feeling overwhelmed with all that is happening. It is so difficult witnessing Mom's decline. I think I speak for all of us, it is a struggle accepting her diagnosis and prognosis.

On Sunday, Abby (my 24 yr old daughter) came to stay with Margie for two weeks. This is a big help as she supports me with running to the pharmacy and spending time with mom while I am at work. My brother John arrived yesterday for a month. He will stay with us in our studio. As a family will be working together to get her affairs in order as well as plan with Margie her memorial service. Margie's other children & spouses (Peter & Jill, Lib & Marv) arrive next week).  Everyone is coming to help mom celebrate her 82nd Birthday on 8/22.

Many people have come forward with love and support. Please don't hesitate to contact Mom via email or regular mail. She is taking great pleasure in hearing from loved ones across the nation. Mom is having to pace herself especially now that the first round of chemo is making her fatigued and she is on pain medication. It would be great if everyone would send her Birthday wishes on or before 8-22-08. Margie will be 82 years old. Her address is:

Margaret Sugar
624 Pearl St. #404
Boulder Colorado 80302.

Take care and remember to check the msugar.com website for updates.

Love,

Anne Donovan
(Margie's third child)

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By Anne on 8/4/2008 1:24 PM

Dear friends,

I have some sad news to share with you about my mom, Margie Sugar.  My mom is in the throws of being diagnosed, most likely with Metastatic Ovarian Cancer. The CT scan results (that were given to Mom last Monday) show tumors throughout her uterus and abdomen. She will have a CT scan guided needle biopsy tomorrow morning and the doctor has ordered a blood test called C125; a blood marker that can detect ovarian cancer. With these two test results we will meet again with the Oncologist (Pat Moran MD @ the Tebo Center) on Friday of this week or next Monday (depending on when the test results are back) to get a definitive diagnosis of either Ovarian, Pancreatic or Lymphoma disease.

Mom has had vague symptoms for about 8 months and has had full work-ups by a Cardiologist, a Gastroenterologist and her Internist. Unfortunately, despite seeking medical care (and even having had a hernia operation one month ago) her advancing symptoms of weight  loss, lack of appetite and pressure in her lower abdomen have finally lead to a cancer diagnosis.  See the article that I have attached below. Ovarian cancer is rare but a very insidious disease. There is no screening tool and only when symptoms get worse is it often detected in a advance stage.

I have made my mom my top priority and we are busy with doctors appointments and procedures. It will be better once we know the diagnosis that we are dealing with. Mom is pragmatic saying she doesn't want any heroic measures and that she isn't afraid of dying at the age of 82 yrs old. Mom acknowledges that she has had a wonderful life and that she lives without regrets.

The oncologist offered her some hope saying that 6 cycles of chemotherapy could potentially shrink the tumors and hopefully make her more comfortable as a palliative treatment (not to be considered a cure or a heroic measure). Mom will need to make a tough decision once we get a final diagnosis; either enter into Hospice and just receive palliative care for 2-6 months before death or go the chemo route that could give her 1-2 yrs. As most of you know Mom's husband George died with Hospice care in 2003. Since George's death Mom has volunteered weekly at the Hospice Thrift Store here in Boulder so she knows as best as one can what to expect with her own demise with the support of Hospice, family and friends.

I'll keep you posted via email. Live today fully!

Love, Anne 

Margaret Sugar
624 Pearl #404
Boulder, Co. 80302

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